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Our Plot to Clot is a Canadian Hemophilia Society (CHS) –  Alberta Chapter fundraising event in hopes of being able to send two registered nurses to a kid’s camp for a week in the summer.  The kids have the opportunity to do some fun stuff in a safe environment as well as going to clinic every day.  They sit with a nurse who gets them to mix their own medications and goes over the importance of cleanliness around their needles.  The nurses teach them how to put on their own tourniquets and prep themselves to poke in the needles.  The goal is give the kids confidence to eventually be able to access their own veins.  We send 15-20 kids to this camp.  If we don’t have a nurse, the kids cannot go.   Some of the proceeds will also be going to the Million Dollar Club of the National CHS.   The Million Dollar Club is a fund set up to assist with research.  This fundraising event was created to raise the awareness of Hemophilia and to help raise funds in search of a cure.

CHS is a non profit organization formed for the purpose of improving the quality of life for all persons with an inherited bleeding disorder. These bleeding disorders include hemophilia, von Willebrand disease, rare factor deficiencies and platelet disorders. CHS promotes research to prevent the suffering of persons with inherited bleeding disorders. The Society’s ultimate goal is to find a cure.

Hemophilia is a rare bleeding disorder that prevents the blood from clotting properly, so a person who has it bleeds more than someone without hemophilia does. In more severe cases, serious bleeding may occur without any cause. Internal bleeding may occur anywhere.  The most common type of bleeding in hemophilia involves muscles and joints. A child with hemophilia will usually refuse to move the affected joint or muscle because of pain and swelling. Recurrent joint bleeding can also lead to chronic damage.

It’s a genetic disorder, which means it’s the result of a change in genes that was either inherited (passed on from parent to child) or occurred during development in the womb. Hemophilia affects mostly boys.  Girls are more rarely affected.  A male can’t pass the gene for hemophilia to his sons, though all his daughters will be carriers of the disease gene. Each male child of a female carrier has a 50% chance of having hemophilia.

Both hemophilia A and B are very rare disorders.

Hemophilia A (Factor VIII) affects fewer than 1 in 10,000 people, or about 2,500 Canadians. Hemophilia B (Factor IV) is even less common, affecting about 1 in 50,000 people, or about 600 Canadians.

For more information please refer to the CHS website at http://www.hemophilia.ca